Speakers short biographies
Pedro Carrascal is the President of the European Multiple Sclerosis Platform (EMSP); CEO of EME (Multiple Sclerosis Spain); the Biscay MS Society and the MS Basque Foundation.
Since 2007 Pedro is board member of the Multiple Sclerosis International Federation (MSIF). In September 2012 Pedro became member of the European Multiple Sclerosis Platform (EMSP) Executive Committee and has served as Vice-President from 2017 till his elections as EMSP President in June 2018.
Pedro has been fully committed to the MS movement in Spain and is one of the promotors of the Spanish “Neuroalianza” (Spanish alliance of neurodegenerative diseases) created in 2012 and “Plataforma de Pacientes” (umbrella organization for the main patients NGOS in Spain) in 2014.
In September 2016, EMSP’s long-serving Programme Manager Elisabeth Kasilingam was appointed as the new Managing Director of the organisation.
Elisabeth joined EMSP in 2009 as a Project Coordinator and has since managed various projects. Her role subsequently evolved into Programme Manager.
With her background in law and European Affairs and a special interest in Human Rights, Elisabeth started her professional experience as assistant policy officer with Brussels-based NGOs Eurochild and the European Patients’ Forum (EPF).
Daphne Kos graduated as occupational therapist (OT) and movement scientist. She worked in the National MS Center in Melsbroek (B) as OT practitioner and researcher and studied fatigue management and assessment in people with multiple sclerosis in her PhD project.
Currently she is professor and co-manager of the OT bachelor and master programme in AP University College Antwerp and in KU Leuven (interuniversity programme with Ghent, Hasselt and Antwerp). Daphne Kos is vice president of the European organisation for rehabilitation in MS (RIMS). Her research domain is situated in the area of fatigue, occupational performance, use of (rehabilitation) technology, life balance, goal setting and assessment, mainly in multiple sclerosis.
Dr. Marcello Moccia works and studies at the UCL Queen Square Institute of Neurology (London, UK), at the National Hospital for Neurology and Neurosurgery (London, UK), and at the Department of Neuroscience, “Federico II” University of Naples (Italy).
Dr. Moccia received his medical degree from Federico II University of Naples in 2010 and completed his training in Neurology (2016) and PhD in Neuroscience there (2019). He has been awarded with a ECTRIMS-MAGNIMS fellowship in 2017. His main research interests is multiple sclerosis. Dr. Moccia is Academic Editor of multiple neurological journals and has authored over 100 peer-reviewed and indexed articles.
Sabina Brennan (PhD., C.Psychol.,PsSI.) is a psychologist, cognitive neuroscientist, writer, filmmaker and award-winning science communicator.
Dr Brennan’s scientific research at Trinity College Dublin has focused on brain health risk and protective factors to establish how decline in cognitive function might be prevented or delayed.
Her public engagement projects aim to increase the societal impact of scientific research by translating complex content into easy-to-understand resources for the general public and key stakeholders. She developed www.brainhealth4ms.com to share easy-to-understand information about brain health for people with MS.
In 2016 Sabina was the inaugural recipient of Science Foundation Ireland’s Award for Outstanding Contribution to STEM Communication. That same year she was a finalist in the US-Ireland Research Innovation Awards. In 2017 she received the Provost’s Award for Innovation in recognition of her work for social impact. Most recently she was listed as one of IMAGE magazine’s Women of the Year 2018.
Sabina has established a strong media profile and is founding director of Trinity Brain Health a Trinity College spin out company that specializes in translating complex scientific content into fun and entertaining animations. Her first book 100 Days to a Younger Brain will be published by Orion Spring on March 7th 2019.
Ignacio Aizpún studied Economics and Business Administration at the University of Navarra. He also made an executive program of General Management at the IESE Business School.
He completed his training with several technical and management improvement programs in entities such as the IESE Business School, the IE Business School, INSEAD and the San Pablo CEU Business School, as well as in the Master of Construction of the School of Architecture at the University of Navarra.
He began his professional career in the field of real estate development and construction, but about 20 years ago he made the leap to the sector of social and sociosanitary services.
In 2001 he joined Telefónica as the General Director of ATAM. He is currently leading a deep digital transformation of the entity he manages, through projects such as the EPSILON initiative, whose purpose is to promote a new way of approaching the treatment of information, for the development of a new sociosanitary paradigm.
Donna became the Executive Director of EFNA in June 2012.
Donna’s training is in Journalism, but she has worked with patient organisations in the neurological sector – in various roles – since leaving university. This included work with the European Migraine and Headache Alliance [EMHA] and the Migraine Association of Ireland [MAI], as well as being a representative to the Neurological Alliance of Ireland.
Donna oversees the strategic direction of EFNA and leads in the creation and implementation of its annual workplan, projects and activities. Since joining EFNA, Donna has led the development of some of EFNA’s current keynote initiatives such as its MEP Interest Group on Brain, Mind and Pain and Training Initiatives for Neurology Advocates.
She is also active in representing EFNA and the neurology patient community externally, including as a current Board Member of the European Brain Council and as a Member of the European Academy of Neurology’s European Affairs Sub-Committee.
CEO NeuroTransData GmbH / NeuroTransConcept GmbH
Dr. Marleen Verbeeck is a clinical research professional since 1995.
After her academic career in scientific research she gained solid grounding in clinical research, first as a clinical research associate, later as a medical writer and trainer. She is author of scientific papers, clinical trial study protocols and final study reports (Phase I to IV).
Since 2004 she works at the European Centre for Clinical Research Training (ECCRT) and trains staff from multinationals and small businesses of the pharmaceutical and medical device industry, of universities, as well as non-profit research organisations across Europe, the United States of America, Asia and the Middle East. As a trainer she is specialised in clinical operations and trial legislation.
Marleen enjoys developing, interactive lecturing, evaluating and testing comprehension of courses and expands her vast educational classroom expertise by exploring new learning techniques.
She is providing classroom and virtual teaching of academics and company staff, located globally, but also tailor-made sessions adapted to the specific needs of client and/or company.
I started working at Lithuanian radio and television 15 years ago. I used to work in various television projects – TV show about cars, documentary series from villages, culture show. Currently, I am responsible for culture policy at Lithuanian National Radio and Television.
The same time as I started my career I was diagnosed with MS. Now, besides my responsibilities at home as a husband and father and at work as a culture editor, I am the chairman of the board at Lithuanian Multiple Sclerosis Association. It is an umbrella organization that associates 11 local MS organizations from various Lithuanian towns.