Pre-registration for specific parts of the programme is mandatory. Check the programme and the registration page.

During the conference, public sessions are organised on the following topics:

  • Latest developments in Brain Health in a digitalised world

  • Access to new technologies to MS patients: trends vs. real needs

  • Digital health and Patient Report Outcomes: how to influence decision-making processes (pricing, reimbursement, QoL indicators)

  • How can improved policies support the further development of digital health in MS management:

    • Priorities of the MS community across Europe

    • Role of MS organisation and patients in influencing policies

Thursday 9th of MAY (Members only)

10:00 - 12:30

12:30 - 14:30

14:30 - 15:30

15:00 - 16:00

16:00 - 17:30

18:00 - 22:00

Annual General Meeting

Members’ NETWORKING LUNCH

Members’ workshop

BREAK

Members’ workshop

Parallel workshop: Strengthening capacity and authority of Baltic countries MS (incl Belarus). In Russian language.

Members’ SEATED DINNER and excursion to Vilnius’ Old Town (PRE-REGISRATION MANDATORY for both dinner and excursion, offered by EMSP)

Pedro Carrascal & Elisabeth Kasilingam

Friday 10th of MAY (open to all)

9:15 - 10:00

10:00 - 11:00

11:00 - 11:30

11:30 - 12:30

12:30 - 14:00

14:00 - 14:20

14:20 - 15:20

15:20 - 16:00

16:00 - 17:00

19:30

Opening session: Preparing the future today

  • EMSP – 30th anniversary

  • Welcome from Lithuania

  • Key note address

Session I: Setting the scene: latest developments in brain health in a digitalised world

  • MS research agenda: how can digital health improve patients’ involvement in MS research?

  • Multi-disciplinary approach in rehab: how can digital health improve this?

  • What are the latest priorities on digital health policies at European level? Inequalities to address and key issues.

  • A young person’s perspective on digital health in MS management to improve QoL.

  • Questions and Answers

COFFEE AND NETWORKING BREAK

Session II: Research and innovation in digital health for MS: access to new technologies to MS patients: trends vs. real needs

  • Latest key developments in research and innovation in digital health for MS.

  • Innovation example of a digital tool that could help improve quality of life of people with MS

  • Panel discussion/ interactive session: what are the expectations from the patients communities, whom should be made aware and collaborate for further successful implementations?

NETWORKING LUNCH

Motivational speaker

Session III: How can improved policies support the further development of digital health in MS management

  • Panel discussion

  • Questions and answers

COFFEE AND NETWORKING BREAK

Session IV: Digital health and PRO: to influence decision-making processes (pricing, reimbursement, QoL indicators)

  • Panel discussion: How can digital support data collection from patients?  What would be the methods acknowledge and use by authorities (EMA, national HTA bodies, etc.)?

  • Question and answers

GALA DINNER (PRE-REGISRATION MANDATORY, fee not included in conference registration)


Pedro Carrascal, President EMSP

Tadas Jačiauskas, President Lithuanian MS Union

To be confirmed

Moderator: to be confirmed

Sabina Brennan, Trinity College Dublin

Daphne Kos, University of Leuven, RIMS

Nicola Bedlington, European Patients Forum (EPF)

Susanna van Tonder, EMSP Young People’s Network


Moderator: to be confirmed

Marcello Moccia, University College London

Ignacio Aizpún, ATAM, mutual support organisation

Marcello Moccia, Ignacio Aizpún, Georgina Carr (UK MS Society), Vanessa Pot (Merck), Steven van de Pavert (Iconometrix), Susanna van Tonder

Izabela Sopalska-Rybak, person with MS, Poland

Moderator: Donna Walsh

Nicola Bedlington (EPF), Georgina Carr, Steven van de Pavert, Dr Bergmann (HTA)

Moderator: To be confirmed

Jana Havlacova (EMSP), Liesbeth Peeters (UHasselt), Dr Bergmann (HTA), tbc

SATURDAY 11th MAY (open to all)

9:30 - 10:00

10:00 - 10:45

10:45 - 11:15

11:15 - 12:00

12:00 - 12:30

12:30 - 14:00

14:00 - 17:00

Opening 2nd day

Just Doing It: Life with MS, testimonials from three MS patients

Clinical Research Workshop (PRE-REGISTRATION MANDATORY, fee is included in conference registration)

COFFEE AND NETWORKING BREAK

Clinical Research Workshop (second part)

Call for Action and closing

BUFFET LUNCH

Excursion to Trakai Island Castle (PRE-REGISTRATION MANDATORY, offered by the Lithuanian Multiple Sclerosis Union)

To be confirmed

Amandeep Donna Nahal, Advocate

Marleen Verbeeck, European Centre for Clinical Research Training

Marleen Verbeeck

Elisabeth Kasilingam