Download the full programme here.

Pre-registration for specific parts of the programme is mandatory. Check the programme and the registration page.

During the conference, public sessions are organised on the following topics:

  • Latest developments in Brain Health in a digitalised world

  • Access to new technologies to MS patients: trends vs. real needs

  • Digital health and Patient Report Outcomes: how to influence decision-making processes (pricing, reimbursement, QoL indicators)

  • How can improved policies support the further development of digital health in MS management:

    • Priorities of the MS community across Europe

    • Role of MS organisation and patients in influencing policies

Thursday 9th of MAY (Members only, BETA Conference Room)

10:00 - 12:30

12:30 - 14:30

14:30 - 15:30

15:30 - 16:00

16:00 - 17:30

19:30 - 22:00

Annual General Meeting

Members’ NETWORKING LUNCH

Members’ workshop 1

BREAK

Members’ workshop 2

Parallel workshop: Strengthening capacity and authority of Baltic countries MS (incl Belarus). In Russian language.

Members’ SEATED DINNER and excursion to Vilnius’ Old Town (PRE-REGISRATION MANDATORY for both dinner and excursion, offered by EMSP)

Pedro Carrascal & Elisabeth Kasilingam

Friday 10th of MAY (open to all, ZETA Conference Room)

9:15 - 10:00

10:00 - 11:00

11:00 - 11:30

11:30 - 12:30

12:30 - 14:00

14:00 - 14:20

14:20 - 15:20

15:20 - 16:00

16:00 - 17:00

19:30

Opening session: Preparing the future today

  • EMSP – 30th anniversary

  • Welcome from Lithuania

  • Key note address

Session I: Setting the scene: latest developments in brain health in a digitalised world

  • MS research agenda: how can digital health improve patients’ involvement in MS research?

  • Multi-disciplinary approach in rehab: how can digital health improve this?

  • What are the latest priorities on digital health policies at European level? Inequalities to address and key issues.

  • A young person’s perspective on digital health in MS management to improve QoL.

  • Questions and Answers

COFFEE AND NETWORKING BREAK

Session II: Research and innovation in digital health for MS: access to new technologies to MS patients: trends vs. real needs

  • Latest key developments in research and innovation in digital health for MS.

  • Innovation example of a digital tool that could help improve quality of life of people with MS

  • Panel discussion/ interactive session: what are the expectations from the patients communities, whom should be made aware and collaborate for further successful implementations?

NETWORKING LUNCH

Motivational speaker

Session III: How can improved policies support the further development of digital health in MS management

  • Panel discussion

  • Questions and answers

Coffee break, Exhibition & Poster session

Session IV: Digital health and PRO: to influence decision-making processes (pricing, reimbursement, QoL indicators)

  • Panel discussion: How can digital support data collection from patients?  What would be the methods acknowledge and use by authorities (EMA, national HTA bodies, etc.)?

  • Question and answers

GALA DINNER (PRE-REGISRATION MANDATORY, fee not included in conference registration)


Pedro Carrascal, President EMSP

Tadas Jačiauskas, Chairman, Lithuanian MS Union

Rimantė Šalaševičiūtė, Chair of the Committee on Social Affairs and Labour, Lithuanian Parliament

Moderator: Trevis Gleason

Sabina Brennan, Trinity College Dublin

Daphne Kos, University of Leuven, RIMS

Nicola Bedlington, European Patients Forum (EPF)

Susanna van Tonder, MS Society Luxembourg


Moderator: Trevis Gleason

Marcello Moccia, University College London

Ignacio Aizpún, Telefonica

Marcello Moccia, Ignacio Aizpún, Georgina Carr (UK MS Society), Vanessa Pott (Merck), Steven van de Pavert (Icometrix)

Izabela Sopalska-Rybak, person with MS, Poland

Moderator: Donna Walsh

Nicola Bedlington (EPF), Georgina Carr, Arnfin Bergmann (NeuroTransConcept GmbH)

Moderator: Trevis Gleason

Jana Hlaváčová (EMSP), Liesbeth Peeters (UHasselt), Arnfin Bergmann, Paola Zaratin (MS Society Italy), Adam Plich (consultant)

SATURDAY 11th MAY (open to all)

9:30 - 10:00

10:00 - 10:45

10:45 - 11:15

11:15 - 12:00

12:00 - 12:30

12:30 - 14:00

14:00 - 17:00

Opening 2nd day

Just Doing It: Life with MS, testimonials

Clinical Research Workshop

Coffee break, Exhibition & Poster session

Clinical Research Workshop (second part)

Call for action and closing

BUFFET LUNCH

Excursion to Trakai Island Castle (PRE-REGISTRATION MANDATORY, offered by the Lithuanian Multiple Sclerosis Union)

Pedro Carrascal

Donna Nahal and Vaiva Sinickiene, Patient advocates

Marleen Verbeeck, European Centre for Clinical Research Training

Marleen Verbeeck

Pedro Carrascal

Clinical Research Workshop

The goal of this session is to provide a basic understanding on drug development and in particular what the role & importance of clinical research is in this context and how patients are involved in this.

The focus will be around ethical guidelines related to clinical research, how to find clinical trials as a patient and the informed consent process.

The workshop is in English.